[HTML][HTML] Enabling a learning health system through a unified enterprise data warehouse: the experience of the Northwestern University Clinical and Translational …

JB Starren, AQ Winter… - Clinical and translational …, 2015 - ncbi.nlm.nih.gov
JB Starren, AQ Winter, DM Lloyd‐Jones
Clinical and translational science, 2015ncbi.nlm.nih.gov
270 VOLUME 8• ISSUE 4 WWW. CTSJOURNAL. COM interinstitutional trust. It also
addresses the “minimum necessary” requirement of HIPAA.• Location within NUCATS: The
CTSA represents a truly multi-institutional structure. Thus, it was the obvious location for the
EDW when each member institution is concerned about control of its own data.• Shared
funding model: The NMEDW is jointly funded by all member institutions. As a result, each
institution has “skin in the game.” The NMEDW is governed by a nine member steering …
270 VOLUME 8• ISSUE 4 WWW. CTSJOURNAL. COM interinstitutional trust. It also addresses the “minimum necessary” requirement of HIPAA.• Location within NUCATS: The CTSA represents a truly multi-institutional structure. Thus, it was the obvious location for the EDW when each member institution is concerned about control of its own data.• Shared funding model: The NMEDW is jointly funded by all member institutions. As a result, each institution has “skin in the game.” The NMEDW is governed by a nine member steering committee representing both clinical and research users, and chaired by the NUCATS informatics lead. Annual major project prioritization is conducted using a Delphi process by the steering committee. Each member organization submits a number of proposed projects, NMEDW staff then estimates approximate effort required for each, and the steering committee members create a composite priority ranking. In addition to the steering committee, an NMEDW Advisory Committee, consisting of the CIOs of the member organizations and the NUCATS informatics lead, meets biweekly.
ncbi.nlm.nih.gov